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Repetitive questions

Caregivers: Dementia | Last Active: Mar 6 10:24pm | Replies (33)

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@pamela78

Twelve years! Yikes. I'm so sorry that you're having such a wretched time. I understand your desire for escape and your feelings of hopelessness. All the advice about being patient and non-confrontational, about knowing it's the disease not the real person, is fine and dandy but actually subduing your own natural reactions is truly a challenge. When I feel angry or have to shout because my husband can't hear and refuses to have his hearing aids checked, I hate the sound of my own voice. My sleep was so disrupted by my husband's nighttime restlessness that I've asked him to sleep separately so I can get the sleep I need to get through the days. I don't have it nearly as bad as many on this site, but I'm sure my turn will come when caring for him will become more difficult physically. I'm 79 and have a serious heart condition and am supposed to avoid stress. Good luck with that! You're not a Debbie Downer; you're just honest.

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Replies to "Twelve years! Yikes. I'm so sorry that you're having such a wretched time. I understand your..."

Ah, yes—the hearing aid thing adding to all the other stress! I can identify with this! Most of the time my husband won't even wear his. I finally started putting them on him, and so far, he hasn't objected. I wish I'd done this sooner. Trouble is, one of them has an extreme amount of static that can be heard from across the room, so we need to take it to get it fixed. That's an hour and a half drive one-way, though, so it will be a while. Today he's just wearing one. Better than nothing. And, like you, I hate when I shout so he'll hear me and I sound irritated. On my good days I can shout without sounding irritated, but on my bad days (and today is one of them), my irritation comes through.

As for sleep, I started sleeping on the couch while taking care of another dog who we were providing hospice care for (not the one who just died, but the one before). She had to go out 1 - 3 times a night. I sleep much better on the couch, so I kept doing it. Even before that, we had separate bedrooms for a few years. My husband was the one who moved to the guest room back then because of yet another dog who required nighttime care. He seemed to like having his own room—and it looks like a teenager's room. 🙂 Clothes everywhere, skis in the corner, etc. Messy, but it's his and was like that before he started having dementia. Fortunately, he sleeps soundly so far. And he goes to bed early, while I sit up on my couch/bed and read in the quiet. I really look forward to that every night. I need it.