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DiscussionCraniotomy is 2/21/2025. Could use some encouraging words.
Brain Tumor | Last Active: 1 day ago | Replies (50)Comment receiving replies
Replies to "I had stereotactic radiation which was supposed to zap the tumor preventing growth however here we..."
Radmom: What recent scan did you have that shows it has grown since the stereotactic radiation? I had a CT scan in 2017 for chronic sinus issues, left sided forehead tenderness,
(it was suspected I had giant cell arteritis-something one doesn't want) blocked ear sensation, and intermittant double vision. The radiologist's report just said "chronic sinusitis." 5 years later a neurologist I consulted looked up the CT scan from 5 years prior and found a meningioma that had not been cited by the radiologist. Yes, I had "chronic sinusitis" but that was because of the presence of the uncited meningioma causing the inflammation. My point is, since the doctors keep telling you that the meningioma that was radiated is not causing your symptoms, perhaps there is another meningioma that is causing them. Probably not, but it did happen to me. Radiologists read a lot of scans and I can see how maybe something is overlooked. I've had one meningioma removed but have since found out I also have 2 others. If you develop one, for whatever reason, you're more inclined to develop others. Keep pushing for answers as I don't want you to suffer for 5 years like I did.