For some reason I got the idea in my head to jump off of this drug from my dosage which is less than 75 mg. Actually I know the reason..I missed a dose Friday morning because I ran out of the house to spend the day with a friend after an acupuncture appointment. When I got home, I thought about something that happened several years ago when I was on both effexor 225 mg (3 75 mg capsules)and neurontin 300 mg(2 150 mg capsules). At the time I was filling up one of those pill boxes that hold 2 weeks of meds. I must have gotten distracted or confused and since the pill bottles were the same and the capsules almost identical, I made a med error as we call it in the medical profession, lol, and didnt realize that I was actually taking NO effexor at all and 5 capsules of neurontin, for at least a week. I remember feeling dizzy and shaky and thought I might have the flu or was overtired from the hours I was working. Then I told my sister I felt like "one of those old people who mixes up their medications" and the lightbulb went on! So I basically had cold turkeyed off of 225 mg, and guess what, I didn't die from it! Of course i immediately reinstated the effexor and decreased the neurontin back to my normal dose. Informed the doctor of what had occurred and was told that I should experience no ill effects since my dosages on both meds "werent enough to really make a difference anyway".

It was several months later that I was prescribed trazodone to help me fall asleep. I had taken ambien and wasn't comfortable with the hypnotic effects it has. It took only one dose of that to cause a severe drug interaction when combined with my other medications, all prescribed by her!! All I had to do was use the medication interaction tracker online to see what was wrong! I immediately stopped the trazodone and asked the doctor if it was possible that I had experienced serotonin syndrome. Oh no, I was told, that's so rare and you are not at risk. But I knew i needed to begin getting rid of these meds and began with discontinuing neurontin. Unfortunately there was no informational forum about discontinuing neurontin and the severe side effects it would cause, besides, I was on "too low of a dose to make a difference anyway". That landed me in the hospital getting a complete cardiac workup. The hospital staff refused to consider that my symptoms were being caused by anything other than a heart attack and refused to let me leave..oh I could have left AMA but with the threat that my insurance would not cover the thousands of dollars the hospital had already charged me. But I knew it was related to medication changes and asked for a medication review with the hospital pharmacist who confirmed that I most likely did experience serotonin syndrome and then discontinuation syndrome, and withdrawal from neurontin, and that I should not have been prescribed the combination of medications I was given.

People on this forum have said how important it is to tell the doctors when you are tapering off this or any other medication, but screw that, after what I went through I see just how much they listen to anything a patient has to say! I had given my doctors all of the information on what I was taking and how much, and ended up going through hell, relying on their opinions instead of forming my own. I have seen it time and time again as a nurse, but first hand experience is the best teacher.

Sorry to get on that long tangent!

I went through protracted withdrawals for 2 years. This is when I began searching for information on PAWS, and learned about windows and waves. It was a lifesaver for me to realize I was not actually going crazy and that others had experienced the same things I was going through.

I guess my whole point is that I know what I'm in for. Those two years were awful but I got through it because I focused on the windows and rode the waves. If I become a bead counter I feel like I am only prolonging the process. I'm going to be miserable during the waves, ok, I am prepared for that. But if I'm going to go through months of it after each taper, it's like 6 of one and half a dozen of another.

Do we tell heroin addicts to taper,? recommend smaller rocks of crack? I don' know the answer to this whole tapering thing but it is worth it to me to try jumping off from this dosage. If I am unsuccessful I'll be the first to admit it and tuck tail, and start back where I left off.

If you've read this far, thank you for listening to my story and to my plan. Please keep me in your thoughts the next few days during the acute withdrawal phase and wish me luck. Hoping I can report success. Thanks again and have a good day. Feel good for no reason!!

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