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Repetitive questions

Caregivers: Dementia | Last Active: Mar 6 10:24pm | Replies (33)

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@rubyredkate

Hi, I'm reading all these blogs and praying your patience and understanding will rub off on me. I get a lot of push back after my husband asks for my help or opinion. Sometimes i want to protect myself by not helping him. He is also high functioning with a horrible memory. I really don’t know how to do this. He squelches all my ideas, and yes i have been educating myself about the disease for 12 years now. Im trying so hard to protect us from all his mistakes, but he resents me. He says thats not true but thats how i feel.
He doesn’t fit the different dementia types. My flesh is hurting and I want to run. No family to talk to, no one wants to hear our stories.
One foot in front of the other day by day.
You may call me Debbie Downer.

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Replies to "Hi, I'm reading all these blogs and praying your patience and understanding will rub off on..."

Twelve years! Yikes. I'm so sorry that you're having such a wretched time. I understand your desire for escape and your feelings of hopelessness. All the advice about being patient and non-confrontational, about knowing it's the disease not the real person, is fine and dandy but actually subduing your own natural reactions is truly a challenge. When I feel angry or have to shout because my husband can't hear and refuses to have his hearing aids checked, I hate the sound of my own voice. My sleep was so disrupted by my husband's nighttime restlessness that I've asked him to sleep separately so I can get the sleep I need to get through the days. I don't have it nearly as bad as many on this site, but I'm sure my turn will come when caring for him will become more difficult physically. I'm 79 and have a serious heart condition and am supposed to avoid stress. Good luck with that! You're not a Debbie Downer; you're just honest.

Hi, all. I was my wife's caregiver for her 14+ years' war and can understand all the incredible and difficult demands that caregiving put on us.

While I know everyone is different in this journey, one thing I used to help me day-to-day was to remind myself, first thing every day, that one day, she'd no longer be alive with me.

Now, years after her passing, I can say the loss and grief I feel from her death greatly outweigh the inconveniences, exhaustion, and more that I felt from all the caregiving tasks, questions, etc.

Strength, Courage, & Peace

This is a great place to vent. No one is judging you. I just wish I had the fortitude to stand up to him in the earlier stages of his dementia. He had always had sound judgment. Now I am the Sally Sour. He doesn’t remember his unsound choices he made but I sure do.