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DiscussionHow do you cope with Mixed Connective Tissue Disease (MCTD)?
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Replies to "You are not alone! After 3 failed ankle fusions my ortho suggested genetic testing, esp since..."
@char8972 Your post made my day! I could feel the strength you've gained by having a positive attitude even with all that illness..with grief and disability. I agree with everything you write about pacing activities. I agree with having a good therapist, and laughter IS the best medicine. I haven't had genetic testing but appear to have something on the spectrum of EDS. I live with RA, Sjogrens, Fibro and radiation damage to my right head, neck and upper back because of treatments for a parotid gland tumor. If illness is chronic and not going away, the only way to cope is to begin to creatively change your life. Well, wishing you the best! I hope others take your advice to heart.