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Sjogren's Question

Autoimmune Diseases | Last Active: Mar 10 9:14pm | Replies (28)

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@char8972

I thought I had MS in the beginning also. It took 3 failed ankle surgeries for my ortho to suggest genetic testing esp since I'm adopted. That's where I found out I have the MTFKR gene mutation and Erles Danlos Syndrome. Suddenly, all my weird symptoms and issues I had growing up made so much sense. My daughter is 31 and has so many of my symptoms. Shes being tested for genetic issues and immune issues. Since chemo I've been diagnosed with peripheral neuropathy, RA, Sjorgens syndrome and Fibro. I'm trying my best to find my new normal🙏🏼❣️

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Replies to "I thought I had MS in the beginning also. It took 3 failed ankle surgeries for..."

Thankyou! I am so sorry you and your daughter are going through this.I feel like I am on the show Mystery Diagnosis just going from Doctor to Doctor with no answers.It is awful. I hope in time I or the Doctors can figure it out.I would just like for something really definite to show up in my Bloodwork at this point.