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How to live after you stop. Meds
MAC & Bronchiectasis | Last Active: Mar 8 12:02pm | Replies (21)Comment receiving replies
I’m on Azithromycin, Ethmabutol, Clofazamine and inhaled Arikayce (Arikayce mid Dec). Started oral treatment 8mths ago (staggered treatment, started on only 2, then added Rifamipicin in November and switched it to Clof not long ago). I was told that if you don’t convert within 6mths, you’re not likely to convert at all/ be cured. So I’ve been so anxious that I’ll never be rid of this Mac. @ncalvan, just wondering how long it took you to convert? This may give me hope
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Hi Tammy,
I am with you. The meds you have been on is what I am on. I have done 3xs a week for three months on arakayce by infusions. It was a rough road but I did it.
I have been on the other meds you mentioned since October. After my three sptum are done ( I don't have any flem to give). I have 12 to 15 months more to go on meds.
How did your body do all those months on these drugs? Did you still feel tired, and aches on the rest of the months that you took your meds?
It is a real is alot to go through on your body I hear you.
Im no doctor but I have been removed from these hard drugs before. If those medications are removed slowly I think it will take time for our body's to recover from being on all these meds and having MAC but hopefully, we will feel better in time. Some doctors ask me where did you get MAC from? If I new I would tell you.
Do you know how you caught MAC?
As far as the MAC coming back we can get it back, but that's the reason we're on meds so long. Hopefully, we won't have any long term affects? Or get it again. Scary stuff.