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I just today had my first visit with a neurologist and it took 6 mos. Wait to get in. She ordered extensive blood work and testing called NCS and EMG tests that you all may already have had. She also wrote a script for PT. She said there are a lot of causes for PN. Diabetes is number 1. Since I was diagnosed with diabetes 2 just over 18 mins. ago. I am not so interested in the why if it as the fix for it. I know it sounds simplistic of me and truth be told everything I've read about PN there doesn't seem to be a fix. Okay I will deal with the loss of some mobility and imbalance but I am so worried reading your posts and the literature the neurologist gave me that this might progress to the hands and arms. I mean at that point won't I need 24/7 assistance. Going to a nursing home us too much for me to even think about. Please let me know if you have experienced in hands and arms how did you function on your own? Really frightened now
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Hi! I have small fiber neuropathy in my entire body and while is it a huge pain (literally and figuratively), pharmaceuticals and holistic treatment can make a huge difference. While I am disabled, I am able to make a living, some things just take problem-solving. I don’t know if/how your condition may or may not progress, but hopefully I can provide some reassurance that even if it did progress, it doesn’t necessarily mean you’d have to live in a nursing home. 🙂 yoga, meditation, mental distraction, social connection, and nervous system regulation helps a ton! Learn your triggers and what calms your nervous system and they may help reduce pain levels
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If you have found the cause of your PN, in this case diabetes, controlling your blood sugar is the best bet to slow down the progress.
I haven't been able to see the neurologist yet. I'm sure the wait is very long. I'm still working full time these days even though I'm dead tired due to sleep deprivation. My arms and hands are tingling and burning, but I'm still cooking, doing light yoga. But you're right. The uncertainty of the future is what I'm terrified of.