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Post Polio Syndrome

Brain & Nervous System | Last Active: Mar 15 5:47pm | Replies (27)

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@carlwade

I am 77 y/o male. I remember having a spinal tap but it came back negative. (Oops) It was probably just before the vaccine. I got better and moved on. I was misdiagnosed as Parkinsons for nearly 10years. Fortunately, In the course of changing neurologist PPS was skillfully diagnosed on an EMG. (I don't have to take that medicine anymore.) I have always been active, running, cycling, etc. I am now where walking is very difficult. I am very discouraged with P.T. What's the point? Scooter shopping is next. I'm not excited.

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Replies to "I am 77 y/o male. I remember having a spinal tap but it came back negative...."

Hello @carlwade and welcome to the Post Polio Syndrome support group on Mayo Connect. Your journey to obtain a correct diagnosis has certainly been a long one. I commend you on your persistence. Do you know what age you were when you had polio?

Are there any other specialists who might be able to treat you at this point?