I’m 28 years old trans man, and was diagnosed with SMA a month or so ago. There’s definitely something bigger that caused it for me, but the threat the SMA presents on my life is scary. I’ve dropped down to 93 pounds. I cannot eat solid foods, and even the protein shakes that I’ve been getting by with, have started getting thrown up every single time I drink them. I’m in constant horrific pain, some of which is so sudden and so harsh I scream. I’m at a loss, I was told to talk to the surgical unit at the medical facility I go to(only place I can go on that insurance), and I can’t talk to anyone until beginning of April. I’m afraid I’m going to die.