I had CAR T one year ago this past February. They kept me in hospital for observation where my most serious side effect was the hospital food - I still can't taste it! On the serious side, my immune system still hasn't recovered. I was on ivig transfusions up until last month and am now on a 3 month hiatus to see what happens - kind of an experiment in real time. My body has definitely changed. For example, I have had 3 vomiting sessions in the past year. I vomit for 3 hours and then magically feel better. Before this I haven't vomitted for 30 years. Btw my wife cooks the Canada Food Guide. Also in the fall, I developed a full body rash - kind of like measles but not. We treated with predisone, betamethasone and zoryve and eventually it cleared up. We don't know if these incidents are a result of CAR T directly or indirectly because of my immune system or because of some other factor. After all I am pushing 76 years on this planet.

And having said all of that, these things have not interfered with my life. I am doing everything that I used to do including camping, fishing, golfing. And I would be skiing if I didn't develop a propensity for concussions a couple of years ago. I see this past year as a "borrowed" year. I live each moment fully as it comes. After all none of us are guaranteed the next moment independent of the odd malady like lymphoma.

Would I do it again? Would I recommend it? Absolutely, unequivocally yes!