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Vulvar Cancer: Anyone else?

Gynecologic Cancers | Last Active: 1 day ago | Replies (151)
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@andwho

I was diagnosed with vulvar cancer stage 1b in May 2023. Not a candidate for surgery had 32 rounds of radiation & 3 rounds if chemo. After 2 Pet/MRIs no sign of the disease. However I suffer from from late side effects.
Tenderness, itchiness & still need to be careful how I sit!
Since I am itchy wondering could this be the beginning of Pagets? What is this? I’ve heard it happens with must vulvar cancer. True??

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Replies to "I was diagnosed with vulvar cancer stage 1b in May 2023. Not a candidate for surgery..."
lrcg | @lrcg | Mar 26 8:49am

I have Pagets but so far no other cancer. A biopsy will tell you for sure. I first has excision of my right labia which I dont recommend. When it cane back I used Imiquiod for 3 months it worked but Pagets keeps popping up. Finding a doctor that will try something besides surgery in nearly impossible. Maybe you have lichen sclerosis ? Good luck with it all. I tell myself it could be worse.

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