← Return to High anxiety regarding Reclast or Prolia decison for OP meds

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@lhankins

@gently
Unfortunately, my rheumatologist will not authorize the tymlos prescription any longer due to the hypercalcemia. He stated the same for Evenity since it can have the same effect on someone like me, so he is really only offering Prolia. I need another medical team but must wait. The endocrinologist appointment I have is in January 2026. I will be on my own once this tymlos pen runs out until then, unless some miracle comes my way. Doing everything I can in the meantime, like eating very clean, weight bearing exercises and supplements. I wish I had not pushed the tymlos to the 0.8 for the last three months, because that is what pushed me over the line. At my last appt with my rheumatologist he made it clear, he did not agree with a titrated dose. I should have kept my mouth shut. I thought he would be more flexible. I have a feeling that there are many people who are successful (like windyshores) with the lower dose. Many in the medical community are not in agreement of this and it is very disappointing.

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Replies to "@gently Unfortunately, my rheumatologist will not authorize the tymlos prescription any longer due to the hypercalcemia...."

lhankins,
what were your serum calcium levels before Tymlos and after?
How much parathyroid testing have you had. Hyperparathyroidism is often
undetected as it is difficult to test for and many practitioners don't know
how to test for it. Parathyroid dysfunction causes osteoporosis.
I'm disappointed, but have confidence in a workaround.
I suspect that the 80mcg dose is too high for many of us. But if you do
have a parathyroid issue, it needs to be resolved first anyway.
Waiting till January doesn't seem workable. If you can, get on a waiting
list and call every possible day.
Meanwhile the Tymlos that you have taken is giving you some protection.