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Thankyou so much! I am going to get a lip biopsy and I will ask about the Blood Tests. It is almost like the Doctors don't want to help you. This has been a nightmare. I thought I had Muscular Dystrophy, but that has been ruled out. It is definitely something Autoimmune and Long Covid on top of it. My whole body was completely attacked.
Replies to "Thankyou so much! I am going to get a lip biopsy and I will ask about..."
@j77 I had a blood test and a lip biopsy that came out negative. They can be false positive false negative. My rheumatologist diagnosed me with sjogren's disease. My ENTs are the one that did the blood test and the lip biopsy and they say nope you don't have it. Then my rheumatologist checked all my blood test and all my symptoms and she says you sure do have it. So watch out. Go to a doctor until you get the answers that you know are true for you.
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I thought I had MS in the beginning also. It took 3 failed ankle surgeries for my ortho to suggest genetic testing esp since I'm adopted. That's where I found out I have the MTFKR gene mutation and Erles Danlos Syndrome. Suddenly, all my weird symptoms and issues I had growing up made so much sense. My daughter is 31 and has so many of my symptoms. Shes being tested for genetic issues and immune issues. Since chemo I've been diagnosed with peripheral neuropathy, RA, Sjorgens syndrome and Fibro. I'm trying my best to find my new normal🙏🏼❣️