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How to Slowly and Safely Taper Off Prednisone but ... no set rules.

Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (65)
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@jeff97

I had an interesting experience yesterday. I'm currently at 7 mg. I started that dose last Friday, having tapered down from 8. I'm also injecting Actemra once a week. I have PMR and GCA. Yesterday I felt like I almost had more energy than I could handle. It felt like I had drunk a whole pot of coffee, even though I only had my usual cup of Earl Gray tea for breakfast. I'm wondering if that could be a sign of my adrenals waking up? I've been under treatment for 8 months. I'm currently tapering 1 mg every 2 weeks until I get down to 5, and I stay there for a month. My doctor hasn't told me what happens after that.

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Replies to "I had an interesting experience yesterday. I'm currently at 7 mg. I started that dose last..."
vanns | @vanns | Mar 4 11:34am

Thanks for your response. Based on what I’ve read from others, you may want to go to.05 in your tapering at this point rather than a whole point. I only suggest this because many people say they get flares around 7 and have to increase dosage.
Also energy is not one of the symptoms of adrenal wake up, but more fatigue, almost like “getting the flu” kinds of symptoms.

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