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@vanns

I’m doing exactly the same. Currently at 7.5, tapering into 7.
I know everyone is different, but how did you do in the 7 towards 6 range? I’m going on a big trip abroad when that is supposed to happen and wonder about staying at 7 because of adrenal “wake up” symptoms during that time period.

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Replies to "I’m doing exactly the same. Currently at 7.5, tapering into 7. I know everyone is different,..."

From what I’ve found on the web, relapses are common in the 5 mg to 7 mg range. This happened to me at the 6 to 5 transition. I resumed the 7 mg dose with relief and then tapered at 0.5 mg every 4 to 6 weeks with good results. I am down to 3.5 mg now and stable. Slight shoulder pain with weight lifting that improves with warming up but is most likely due to PMR.

I had an interesting experience yesterday. I'm currently at 7 mg. I started that dose last Friday, having tapered down from 8. I'm also injecting Actemra once a week. I have PMR and GCA. Yesterday I felt like I almost had more energy than I could handle. It felt like I had drunk a whole pot of coffee, even though I only had my usual cup of Earl Gray tea for breakfast. I'm wondering if that could be a sign of my adrenals waking up? I've been under treatment for 8 months. I'm currently tapering 1 mg every 2 weeks until I get down to 5, and I stay there for a month. My doctor hasn't told me what happens after that.

From 10 to 5, taper was 1 per month. This was an interesting period. Mild osteoarthritis in wrists (dx by xray, since gone), occasional weird cramping in arches, index fingers, rotator cuff pains…but never PMR.
SED was normal.
I think I would continue tapering if I were you, expecting some minor discomfort from time to time.
Float your plan past your doc, have enough prednisone and a dosage plan to deal with a flare if it happens, and keep moving. Good luck.