That video is invaluable. I have watched it so many times. I chose not to go on the Big 3. I found the LungMatters group on Facebook, which basically follows what Dr McShane tells you to do. Be patient with yourself because it takes time to learn how to clear your airways and to completely change your lifestyle to fit all this in!

I was able to clear my MAC and pseudomonas with airway clearance. It took me two years but I didn't have any more lung damage. The hard part is accepting that this is a life sentence so if you do the precautions, you can live a full life, but you'll have less time in the day than "normal' people.

Summary of what I do:
Twice a day:
* Nebulize with levalbutoral .31mg for 10 minutes
*Nebulize with 7% saline for 22 minutes using the vest at the same time.
* Sinus rinse with STERILIZED water.
* Postural drainage. I lay on a slant board or a mat with three pillows under my butt. This took me a long time to figure out. I use the Autogenic Drainage app for 6 minutes, pause then do it again. I lay on my back then a little on my side/back. You have to experiment to find what works for you.

* All nebulizing equipment is sterilized by agitating in dish soapy water, then rinsed, then boiled for at least 10 minutes in distilled water. I use a baby bottle dryer or air dry the equipment.
* All drinking water is boiled for at least 10 minutes to kill the MAC. I use the Instant Pot for this or a big stainless steel pot on the stove.
* I use a Lifestraw Go cup when I am out and about. It's the only filter that takes out MAC.

* Exercise regularly
* GERD precautions - especially sleeping on an angle.
* Extremely limited alcohol, limited processed food.
* Only cooked food if I am at a restaurant.
* I use baking soda and filtered water to clean my veggies then rinse in sterilized water.

It's a lot but you work into it and then just get used to it.

I am on my fourth pulmonologist. They all say they know the disease, but most don't. I found a bronchiectasis specialist two hours away but it's worth it. He's not perfect but he really understands the disease.

You can do this!!