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High anxiety regarding Reclast or Prolia decison for OP meds
Osteoporosis & Bone Health | Last Active: 2 days ago | Replies (190)Comment receiving replies
from the archives of windyshores | @windyshores | Oct 3, 2022
I started Tymlos at half and then full dose and ended up in the ER. Had afib, but also was dizzy, headachy, pain all over, nausea- lots of side effects.
I stopped, then met with docs, then restarted at two clicks out of 8 (my idea). I slowly went up over two months, to 7 clicks, where I have stayed for a year. This really minimized side effects. Many days I have none at all.
I have found that hormonal drugs like this (and my cancer med too) have more side effects at first and they change and even lessen. But my full dose attempt created a cardiac side effect that was serious.
With fractures and a committed desire to avoid further pain and disability, I was determined to get back on and have not suffered any significant side effects with this ramp up plan.
That said, Forteo was intolerable for me and does not have an adjustable dose. I have not tried Evenity but that might be an option for you.
Or....you could try two clicks of Tymlos and see what happens, then go to 3, then 4.....and so on!
Replies to "from the archives of windyshores | @windyshores | Oct 3, 2022 I started Tymlos at half..."
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@gently
Unfortunately, my rheumatologist will not authorize the tymlos prescription any longer due to the hypercalcemia. He stated the same for Evenity since it can have the same effect on someone like me, so he is really only offering Prolia. I need another medical team but must wait. The endocrinologist appointment I have is in January 2026. I will be on my own once this tymlos pen runs out until then, unless some miracle comes my way. Doing everything I can in the meantime, like eating very clean, weight bearing exercises and supplements. I wish I had not pushed the tymlos to the 0.8 for the last three months, because that is what pushed me over the line. At my last appt with my rheumatologist he made it clear, he did not agree with a titrated dose. I should have kept my mouth shut. I thought he would be more flexible. I have a feeling that there are many people who are successful (like windyshores) with the lower dose. Many in the medical community are not in agreement of this and it is very disappointing.