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Mestinon for Long Covid

Post-COVID Recovery & COVID-19 | Last Active: Mar 16, 2025 | Replies (31)

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Profile picture for saraheigen @saraheigen

I would be interested in this. I have been suffering from Long COVID since Jan. 2023. I can't even work anymore, I am 50 & there are a lot of days I feel my 85 year old mother can run circles around me. I would be up for a private type of meeting off of the Mayo site. About 9 months ago someone was shaming me on this platform & this is the 1st time I have even opened this site. I am so alone & that person made it even worse!

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Replies to "I would be interested in this. I have been suffering from Long COVID since Jan. 2023...."

I am so sorry. I am in this same situation and it is just awful. 90 year Olds are opening the door for me when I was running 10 miles a day. I was fit and attractive and look like some kind of creature now. I have Long covid and some kind of Autoimmune/Muscle Disease that covid brought on that no Doctor can figure out. It is hard not to be salty.