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Sjogren's Question

Autoimmune Diseases | Last Active: 3 days ago | Replies (28)

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@j77

Thankyou so much! I have done so much research and I think this is what I have. Probably brought on by Covid. Have you tried IVIG or anything that has helped at all. I forget to mention in my post that I can feel hot, cold and touch on the outside of my torso, but my insides are numb. I am thinking that could possibly be small fiber neuropathy too. The Doctors look at me like I am making it up when I tell them that symptom. I am still trying to figure out how this happened to me.

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Replies to "Thankyou so much! I have done so much research and I think this is what I..."

I am on IVIG not given right by the doctor. Every 3 months 5 times a day. When I took it previously every two weeks. The panzyga I take last only two weeks. Then I get dizziness, balance problems with my motor neuropathy my hands start shaking worse.