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How to live after you stop. Meds
MAC & Bronchiectasis | Last Active: Mar 8 12:02pm | Replies (21)Comment receiving replies
I understand your anxiety. I was on the big 3 and arikayce for total of 4 years. Stopped in Oct. I felt naked with no protection. The anxiety fades. And my CT this year showed nothing new and clear. They will monitor me and watch for any symptoms that it’s back. I do daily nebulizer with saline and wear my Afflo vest. Kept taking probiotics and added turmeric as an anti-inflammatory. So far so good. Keep us posted on how you do.
Replies to "I understand your anxiety. I was on the big 3 and arikayce for total of 4..."
I’m on Azithromycin, Ethmabutol, Clofazamine and inhaled Arikayce (Arikayce mid Dec). Started oral treatment 8mths ago (staggered treatment, started on only 2, then added Rifamipicin in November and switched it to Clof not long ago). I was told that if you don’t convert within 6mths, you’re not likely to convert at all/ be cured. So I’ve been so anxious that I’ll never be rid of this Mac. @ncalvan, just wondering how long it took you to convert? This may give me hope
Hi Ncalvan,
That's great news. I have been on 3 drugs plus infusions. I'm glad the anxiety fades cause I couldn't go through this again.
Do you feel any lasting affects or anything?
I am scheduled to stop meds next month and I am so exited! How many times a day do you nebulize?
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Congratulations. That was a long haul.
Glad to hear how you are doing and that you added turmeric for inflammation. In todays world we almost all need probiotics.
Barbara