← Return to Talk to me about your MAC journey please

Discussion

Talk to me about your MAC journey please

MAC & Bronchiectasis | Last Active: Mar 7 3:34pm | Replies (12)

Comment receiving replies
@help2025

What is MAC? I have been having lung ever since my car accident 1 year ago. I fractured my sternum and had a collapse long. They put me on steroids and told me I had a virus. But then my lungs got woarse and they said I have Bronchiectasis. Then I had fallen walking my dog and could not walk up stairs or across the hall to my bathroom with out my oxygen dropping. I went to the ER and they said I have pneumonia, a blood clot in my right leg and UTI from stressing continence from coughing so much. Also, now I have blood in my urine but no infection. They’re checking me for autoimmune problems and say that it’s inflammation. They said it’s definitely not a virus. All the viruses came back negative. I had cancer as a child which did put some scope on my lungs, but I was told that the scarring has not changed. They’re worried that the truth I had in 2022 could have caused some of this, but my oncologist says no it’s too far out. even though I have all the symptoms except the autoimmune if you listen to the commercial, I have mucus in my chest now it’s starting to break up now that my chest fracture is starting to heal. I can actually cough and get some stuff out. I’m a lot of medication. They want the pneumonia to heal then do a bronchoscopy. But my pulmonologist does not want to put me through that when he says the treatment is the same. I just don’t know what to do but I have been like this for months. I went from do martial arts to not being able to walk across the bathroom hall without oxygen 24 hours a day. Any suggestions would be greatly appreciated.

Jump to this post


Replies to "What is MAC? I have been having lung ever since my car accident 1 year ago...."

Hi Help2025,
You poor thing. That is a lot to have to deal with I am completely on board with you. I posted a reply. Hopefully there will be some helpful information for you.

I would recommend you research Mycobacterium avium complex (MAC),
I think that would help you to see if it may or may not be your symptoms.

I hope you don't have it. It is a very unforgiving illness