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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 22 hours ago | Replies (6454)Comment receiving replies
@matk
I'm sorry to hear that you have neuropathy.
If I were you, I wouldn't fear what may or may not happen in the future. 99% of the things you worry about never happen and the other one percent is going to happen regardless so what's the point in worrying about it.
I developed neuropathy 40 years ago with all the horrible pain & balance issues. Many years later the pain went away replaced by numbness. The numbness went from my feet just past my waist causing ED, bladder & bowel complications. The numbness eventually regressed and is mild now and mostly affects my feet with some in my ankles and lower legs. I do have weakness in my legs. It's difficult to tell how much of my balance problems are related to neuropathy and how much is due to my seizures and seizure medications.
Take care,
Jake
Replies to "@matk I'm sorry to hear that you have neuropathy. If I were you, I wouldn't fear..."
Jake, I have trigeminal neuralgia. i.e. pain across upper right teeth gums and sometimes in the jaw. Was prescribed cabamazepine. Felt drunk during the day ATAXIA. Have halved the does from 200 to 100 at night. In morning I take 1/4 teaspoon of cayenne pepper. All good now depending on whether I don't put plenty in my drinks and tea. Tried tenor sax a little while ago. Some pain in teeth with low noes. Otherwise all good. No ataxia.
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Jake, thank you for your thoughts. I am generally doing well with the Gabapentin (1200 mg 3x daily), but it's the occasional night when all my pains are flaring up, including the prickling that started it all, and I think if this is what the future is ... I am not sure I will be able to bear it. That is my fear.
But you're right. It is not as though worrying will change things. I take long walks every day because it makes me feel better overall and seems to keep THOSE nights away.
Thank you,
Mat