I am struggling with exhaustion and pain in my legs as well as a weight gain of 25 lbs in less than a year
I was suppose to get a mri and pet scan in February ( 4 months after my last PRRT treatment) but I had an URI and had to cancel
Rescheduled for March
My last set of bloods were good
Neurologist did an EEG and a vascular sonogram all good
Still unknown why I get severe pains in my temples and walk to the right side on numerous occasions
Cardiologist did a stress test EKG and an echocardiogram all good
Still unknown why my BP and pulse are so erratic
My cardiologist believes it is all from the octreotide but I don’t think stopping us an option to
I remain hopeful and grateful for every day
Thank you for asking

@ teresa33250:
Lanreotide 28 day injections- I have taken them monthly since 10/21. My main concern is the boil-type sores that form around/on my nose and occasionally on my cheeks. They are firey red and very sore and remain for 4-5 days, then an infection fluid comes out and they slowly heal, but leave a scar mark. I have tried every remedy available with no luck; however, lately I have been applying retinol cream (Nutragena) on face every night. This has reduced the amount of sores and I think they heal up quicker.
I can’t swear this is caused by the Lanreotide injections, but I never had it before! I am 79 yrs old… you don’t suppose I am going through pimple puberty again , do you? 🙂