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@janeaddams

Thanks, ericy210 for being our spokesperson. It'll take a lot of energy and I hope you're getting some rest to prepare. I agree with all the other comments and would add this: From what I've learned (since dx in 2023), one of the hardest parts is the gaslighting and lack of understanding, not just from doctors(!) but from close friends and family. Many people just don't get it and say stuff like "You LOOK good, so how can you STILL be sick? Maybe you need some lavender aromatherapy cuz that works for me ..." etc. etc. Much more information needs to be blasted to the general public since we can't be explaining this over and over... it takes too much energy. I'll be watching all week and thanks for taking this on for the rest of us! (Bottom line: More publicity, please!)

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Replies to "Thanks, ericy210 for being our spokesperson. It'll take a lot of energy and I hope you're..."

It’s a horrible invisible disease. I feel like someone with COPD who people get upset with because the park in handicap parking and have authorization to do so. The COPD person legit can’t walk as far as others, but they may look great to people.