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MAC with Interstitial Lung Disease

MAC & Bronchiectasis | Last Active: 4 hours ago | Replies (10)

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@irene5

Hi Barbara . I can’t do a sputum. Just not a spitting kind of gal:)! Much to my detriment really because I had to always have a bronchoscopy . I hate saying this , but the reason I had no choice was because I would have died without treatment. I was losing weight like it was my job, could not eat, etc etc. . I was told I was dying by my infectious disease doctor. Not all MAC cases are as serious as mine was so I don’t want to scare anyone. I did several years of pills and then Arikayce and now the MAC is gone. Mine is definitely a MAC success story. Irene5

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Replies to "Hi Barbara . I can’t do a sputum. Just not a spitting kind of gal:)! Much..."

it appears the Arikayce is turning out to be a great medication for MAC from what I am understanding.
For myself I am somewhat encouraged with my being able to put some weight on and sleeping better. So hopefully I am keeping the MAI from growing without taking the antibiotics and maybe, just a big maybe, lessening it.
Looking forward to seeing another C Scan result in April and new sputum test results.
Glad that is in the past for you. Success stories do abound.
Barbara