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MAC with Interstitial Lung Disease

MAC & Bronchiectasis | Last Active: 4 hours ago | Replies (10)
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@blm1007blm1007

Hello Irene 5 When you said you "had no choice but to do the medications" was it based on just the MAC infection, do you know? Was it based on a worse C Scan? Or do you think it was based on both? Did you have a cavity showing on the C Scan just before starting the antibiotics? Do you remember what the last sputum test result was just before you started the antibiotics?
Glad you are "no longer being treated as it is gone."
Barbara

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Replies to "Hello Irene 5 When you said you "had no choice but to do the medications" was..."
irene5 Irene Estes | @irene5 | 5 hours ago

Hi Barbara . I can’t do a sputum. Just not a spitting kind of gal:)! Much to my detriment really because I had to always have a bronchoscopy . I hate saying this , but the reason I had no choice was because I would have died without treatment. I was losing weight like it was my job, could not eat, etc etc. . I was told I was dying by my infectious disease doctor. Not all MAC cases are as serious as mine was so I don’t want to scare anyone. I did several years of pills and then Arikayce and now the MAC is gone. Mine is definitely a MAC success story. Irene5

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