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Living with Neuroendocrine NETS, any advice?

Neuroendocrine Tumors (NETs) | Last Active: Apr 11 12:20am | Replies (111)
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@pavlina60

Yes, they remove the gallbladder because if you get on Lanreotidd treatment ( as I am) it damages (forms gallstones) the gallbladder, so they remove it at the same time.
I had the same - open surgery, also with hysterectomy as it was unrelated to NET, but discovered during my first DG PET scan. And I am still around - on March 10 will be " celebrating' my 2nd Lan treatment anniversary :). We zebras are a strong bunch!💜🦓

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Replies to "Yes, they remove the gallbladder because if you get on Lanreotidd treatment ( as I am)..."
ricki8 | @ricki8 | Mar 10 1:15pm

Hi pavlina60
I just contacted my Oncologist and she said the bloodwork would show if we might have a weakness to have gallstones. I would not assign Lanreotide as the main culprit. There are other tests as well.

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