Connect
← Return to Oxaliplatin is no walk in the park, advice for CAPOX regimen?
Discussion
Oxaliplatin is no walk in the park, advice for CAPOX regimen?
Colorectal Cancer | Last Active: 13 hours ago | Replies (35)Comment receiving replies
Mine was also 6 months - IV and then two weeks of pills, then a week off. I experienced many of the same side effects - day 3 crash, cold sensitivity, nausea, I would lose the ability to walk unassisted, my speech was garbled and my hands didn't function properly during the last 30 minutes of my IV treatments, then I would slowly recover enough to walk on my own over the next 4-5 hours. I lived under an electric blanket and found journalling helpful as well. I ate whatever I could tolerate - ensure and boost protein drinks (room temp) were good.
Replies to "Mine was also 6 months - IV and then two weeks of pills, then a week..."
Connect
Hi, thanks for replying. That FOLFOX was no picnic—but we did it! I have residual neuropathy in feet and finger tips—but hoping it will resolve with time. After FOLFOX, a PET scan showed NED (no evidence of disease—yay, knock wood, thank God).
However, now I’m on Xeloda (capecetibine/oral 5-FU) pills. My oncologist said it’s like extra insurance coverage. Instead of 2 weeks on, one week off, my doc has me on 7 days on and 7 days off. Basically, pills every other week. He said some studies have shown that by the second week, drug cumulation potentially may cause more difficult-to-manage side effects. I’m extremely sensitive to ALL meds, so he felt this schedule would be more tolerable for me, and it adds up to the same protocol dosing. (Do not want to cast any doubt on anyone else’s treatment or experience—this is my individual situation.)
Just to be sure: were you on capecetibine (Xeloda/oral 5-FU)? How are you? How did you tolerate the pills? Hope you’re doing well now!