I watch a lot of lectures from syringomyelia and chiari..... Very good information in those. That neurosurgeon that basically dismissed it.....ever since then I feel weird even mentioning it because I felt so dismissed it's sad. I wear a soft collar at home because sometimes I can barely hold my head up. I live in missouri but my dad lives in Minnesota and that's why i was asking questions about getting an apt at mayo cuz i could go see my dad and do apt at same time