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My doctors have decided not to treat my MAC or Broncheostatis

MAC & Bronchiectasis | Last Active: 4 hours ago | Replies (12)
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@pacathy

I am really sorry that you are going thru this. You’ve come to a good place for help.

Question-if your QT is that dangerous for you, have they discussed treating it? Are you on any meds that could be causing it?

What does CT say about bronchiectasis? Mild, severe? Is your cough productive?

Does your cardiologist think it’s ok to for you to exercise?

There are many resources for help with airway clearance.
You could start with deep breathing and huff coughs. You tube has videos on huff coughing. You can also buy an aerobika or acapella device from Amazon and the companies have videos on their use.
Postural drainage can help if you don’t have reflux. Google has diagrams. If you look at what the CT says about the location of the infiltrates you can

Do you have a nebulizer?

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Replies to "I am really sorry that you are going thru this. You’ve come to a good place..."
doberdoo | @doberdoo | 6 hours ago

Thank you for your response. My infiltrates are diffuse. In both lungs and all lobes. Nodules and Ground Glass Opacities throughout. CT does not mention severity. I do have a nebulizer but can’t use it because the drug they prescribed for it will cause the QT Prolongation. I asked for, and they refused a prescription for 7 percent saline.

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