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Complications with Peripheral Neuropathy

Chronic Pain | Last Active: Mar 12 11:07pm | Replies (38)

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@scain

I am afraid after reading your journey with PN. I will see the neurologist tomorrow (I've waited 6 months for this appointment!). I don't expect much after reading a lot of different comments made by those of you who have had this longer than me. Mine began about 3 years ago when my feet and ankles were swollen. My primary sent me for ultrasounds to rule out blood clots and then never followed up with me. On my own, I saw a podiatrist who scared me so much that I never returned. She did some quick tests on the soles of my feet and said it was neuropathy. She didn't know what kind of neuropathy but did say that she could probably build me a brace later on for better walking. As said, it was my first time seeing her and I had to race home and google neuropathy as I didn't know what it was. Then about a year and half ago, I was diagnosed with diabetes 2 and then the loss of feeling started in the soles of my feet. As I was taking Lyrica for a different problem, I can't say that I experience pain but more like restless leg syndrome with pins and needles in my feet and ankles. After reading a lot of different PN posts here, it seems that most neurologists are not up to speed in either diagnosing PN or having any helpful info for it so I will go tomorrow but not have much hope that I will get any answers. I think since I began reading these PN posts, I have learned more about it and how different people are affected by it and are trying to cope with it. I will post again after my visit if any light at all is shed on this insidious condition. Thank you all.

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Replies to "I am afraid after reading your journey with PN. I will see the neurologist tomorrow (I've..."

I am also a type two diabetic with pn . My feet are killing me. My foot swells and I have no feeling up to just above where your sockets would go. My toes feel like they are going to blow off it’s so bad. I also have rls even in the leg that’s was amputated. I’ve had injection at the pain clinic that haven’t helped. I went to a trial for my phantom pain they froze the nerve which is like burning it into that did help. For the neuropathy I went to Emory hospital. There they used a I v to administer something that sounds like katamine don’t know how to spell it, one nurse said it’s been used as a horse tranquilizer, she may have been joking. It knock you out and you just sleep for about eight hours. Some great sleep but it didn’t help at all. I’m about ready to give up and face the fact that I’ll have to live with this neuropathy and rls until I’m called home. I’m getting it in my arms and hands arms now. Hope you have better success getting help than I did. Spinal cord stimulator had it removed didn’t help. The between the neuropathy, rls, phantom pain. Nothing has helped. If you come up with something that works let everyone know. Good luck andd God Bless. Maybe with everyone seeing different Doctors maybe someone will find something that works. Hang in there.