You could try taking alpha lipoic acid, it's a supplement that my doctor suggested I add to my ever growing list of supplements and prescription drugs(I'm currently taking 12), and it seems to have helped, a little. But I'll take anything I can get at this point.
Thank you for the fast response. I have tried it but only for the one month and found no difference in my symptoms but maybe I need to stay on it for a longer time.
I’m scheduled to visit a local pain specialist 3/4/25 on pre op to get Proclaim XR SCS System . I have chronic pain with Neuropathy in my feet , I am looking for BurstDR , which may mask the symptoms. Electrode wires in my spine , Spinal Cord Stimulation ( SCS ) therapy. Has this been tried on any patients for their chronic pain from Neuropathy ? Looking forward to some input from all , or anyone. If I chose SCS to mask the pain , and it works vs not , I’ll let yall know. Thanks
Thank you for the fast response. I have tried it but only for the one month and found no difference in my symptoms but maybe I need to stay on it for a longer time.
I’m scheduled to visit a local pain specialist 3/4/25 on pre op to get Proclaim XR SCS System . I have chronic pain with Neuropathy in my feet , I am looking for BurstDR , which may mask the symptoms. Electrode wires in my spine , Spinal Cord Stimulation ( SCS ) therapy. Has this been tried on any patients for their chronic pain from Neuropathy ? Looking forward to some input from all , or anyone. If I chose SCS to mask the pain , and it works vs not , I’ll let yall know. Thanks
I’m scheduled to visit a local pain specialist 3/4/25 on pre op to get Proclaim XR SCS System . I have chronic pain with Neuropathy in my feet , I am looking for BurstDR , which may mask the symptoms. Electrode wires in my spine , Spinal Cord Stimulation ( SCS ) therapy. Has this been tried on any patients for their chronic pain from Neuropathy ? Looking forward to some input from all , or anyone. If I chose SCS to mask the pain , and it works vs not , I’ll let yall know. Thanks
I tried that implant, the trial phase was for two weeks, and in my case it did not work, no matter how the system was tweaked by the specialist, so it was taken out. There is a few of those out there. Now, the pain management doctor is suggesting one called DRG simulator that I have been told stops the pain signals from my legs to the brain, controlled by the wearer when necessary. Again, there is a trial implant to see if it works on me. I have had no positive reacción with electric type of devices such as Sanexa a type of aTENS device, Nooro and I am hesitant to go thru with it. As we realize that each of us experiences different reactions to different stimuli, or procedures to try to curb the pain I cannot comment either pro or con on a procedure or device. There is always the hope that something out there will help us.
Hey Everyone!!
I just wanted to share with you, that I also have had a lot of symptoms of neuropathy numbness and pain. My diagnosis is severe axonal sensorimotor polyneuropathy. It took me six years to find NuLife Wellness Sanexas treatment here in Maine that actually really works! If you would like to know more about the revolutionary Sanexas, I will gladly send you my story. Let me know. Wish you all the best! https://www.rstsanexas.com/
@shortie I have neuropathy but no severe pain at this time. I do suffer from unbearable itching at times. I have numbness in my calves and feet. I would like to hear your story and hear about your findings. Thank you , Laura Henderson
Has anyone tried Arialief for neuropathy and what were the results. I have had neuropathy for five years and now I have severe numbness and tingling in my hands and feet and I am unable to walk without a walker. So far there is nothing, from what I can see, that actually helps this condition. I am not dealing with the pain anymore but this condition is mentally, physically and emotionally troubling! I saw this pill advertised on Facebook and I refuse to fall for all the scams that are out there taking advantage of all our sufferings. I hope I can hear back from some of you regarding this. Thanks
I moved quickly from feeling like I was walking on rocks, to balance problems, to tingling feet and numbness in both feet and above the ankle on the left. I was told by a neurologist and a podiatrist, that that there was nothing to be done for numbness. And, I have read that in every forum. I’ve never had any pain but the ‘rocks’ feeling. Supplements are Vitamin B 12, lopoic acid, B-complex, and magnesium. Haven’t been on any of them for more than 2 months.
From very shaky with a cane to a rolling walker. Left foot much more numb. Getting upstairs at night is still so scary, I use a stair cane now that rest on two steps at a time. Still need help. Dread going up. This Tuesday, I am getting my stairs measured for a chair lift. They are not as expensive as I thought. Cheaper than attempting a shower in our small powder room. Use a shower chair that I can sit on and lift my legs and slide over under the showerhead. My feet are too heavy to lift.
Stay in here and read. This is the best place for the best information and advice. Good luck. 🍀
I go from feeling hopeful, to angry, to sadness. It is an emotional roller coaster.
The advertisements? The very minute you use your search engine and type in neuropathy, 💥 you will see so many ads or testimonials for what ‘really works’. NOTHING that these snake oil people are pushing works. I actually call them that and shame them for taking money from desperate people. Mostly I just hit the delete button.
Only thing keeping me going, other than my husband a a few close friends that call often, is my recumbent bike, my foot massager and my portable elliptical. Massage the feet and ankles nightly. I use any lotion with mint in it, Bengay or Vicks vaporub. I watched videos and try to
do a vigorous massage.
@shortie I have neuropathy but no severe pain at this time. I do suffer from unbearable itching at times. I have numbness in my calves and feet. I would like to hear your story and hear about your findings. Thank you , Laura Henderson
I moved quickly from feeling like I was walking on rocks, to balance problems, to tingling feet and numbness in both feet and above the ankle on the left. I was told by a neurologist and a podiatrist, that that there was nothing to be done for numbness. And, I have read that in every forum. I’ve never had any pain but the ‘rocks’ feeling. Supplements are Vitamin B 12, lopoic acid, B-complex, and magnesium. Haven’t been on any of them for more than 2 months.
From very shaky with a cane to a rolling walker. Left foot much more numb. Getting upstairs at night is still so scary, I use a stair cane now that rest on two steps at a time. Still need help. Dread going up. This Tuesday, I am getting my stairs measured for a chair lift. They are not as expensive as I thought. Cheaper than attempting a shower in our small powder room. Use a shower chair that I can sit on and lift my legs and slide over under the showerhead. My feet are too heavy to lift.
Stay in here and read. This is the best place for the best information and advice. Good luck. 🍀
I go from feeling hopeful, to angry, to sadness. It is an emotional roller coaster.
The advertisements? The very minute you use your search engine and type in neuropathy, 💥 you will see so many ads or testimonials for what ‘really works’. NOTHING that these snake oil people are pushing works. I actually call them that and shame them for taking money from desperate people. Mostly I just hit the delete button.
Only thing keeping me going, other than my husband a a few close friends that call often, is my recumbent bike, my foot massager and my portable elliptical. Massage the feet and ankles nightly. I use any lotion with mint in it, Bengay or Vicks vaporub. I watched videos and try to
do a vigorous massage.
I have ideopathic neuropathy. First diagnosed in 1999. My main issue is balance and restless legs at night. Also some venous insufficiency recently. I am 85. I wear support hose in the day. I find rubbing my legs with frankincense and myrrh in an olive oil rub sooths my legs enough that I can sleep. I was on gabapentin, lyrica, etc but that only made my balance worse. I am now wearing ( one week) the HIKE "earth shoes" hoping for some relief. Too soon to tell.
You could try taking alpha lipoic acid, it's a supplement that my doctor suggested I add to my ever growing list of supplements and prescription drugs(I'm currently taking 12), and it seems to have helped, a little. But I'll take anything I can get at this point.
ALA has helped reduce the numbness for me, an 85-year-old man, 10 years into being diagnosed with peripheral neuropathy. A dosage of 300 mg per day is considered light, and I will soon increase it if heavy numbness progresses beyond the bottom of my feet (mild numbness felt to lower calf area).
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Thank you for the fast response. I have tried it but only for the one month and found no difference in my symptoms but maybe I need to stay on it for a longer time.
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Helpful -
Hug
1 ReactionI’m scheduled to visit a local pain specialist 3/4/25 on pre op to get Proclaim XR SCS System . I have chronic pain with Neuropathy in my feet , I am looking for BurstDR , which may mask the symptoms. Electrode wires in my spine , Spinal Cord Stimulation ( SCS ) therapy. Has this been tried on any patients for their chronic pain from Neuropathy ? Looking forward to some input from all , or anyone. If I chose SCS to mask the pain , and it works vs not , I’ll let yall know. Thanks
What dosage are you taking? Maybe you're not taking enough, my doctor started me with 1200mg a day. I'm taking 2 600mg capsules a day.
Hello @danieldcassidy, There are quite a few discussions and comments on spinal cord stimulators that you might find helpful. Here's a search link that lists the Connect discussions and comments for spinal cord stimulators - https://connect.mayoclinic.org/search/discussions/?search=spinal%20cord%20stimulators,
I tried that implant, the trial phase was for two weeks, and in my case it did not work, no matter how the system was tweaked by the specialist, so it was taken out. There is a few of those out there. Now, the pain management doctor is suggesting one called DRG simulator that I have been told stops the pain signals from my legs to the brain, controlled by the wearer when necessary. Again, there is a trial implant to see if it works on me. I have had no positive reacción with electric type of devices such as Sanexa a type of aTENS device, Nooro and I am hesitant to go thru with it. As we realize that each of us experiences different reactions to different stimuli, or procedures to try to curb the pain I cannot comment either pro or con on a procedure or device. There is always the hope that something out there will help us.
@shortie I have neuropathy but no severe pain at this time. I do suffer from unbearable itching at times. I have numbness in my calves and feet. I would like to hear your story and hear about your findings. Thank you , Laura Henderson
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Like -
Helpful -
Hug
1 ReactionI moved quickly from feeling like I was walking on rocks, to balance problems, to tingling feet and numbness in both feet and above the ankle on the left. I was told by a neurologist and a podiatrist, that that there was nothing to be done for numbness. And, I have read that in every forum. I’ve never had any pain but the ‘rocks’ feeling. Supplements are Vitamin B 12, lopoic acid, B-complex, and magnesium. Haven’t been on any of them for more than 2 months.
From very shaky with a cane to a rolling walker. Left foot much more numb. Getting upstairs at night is still so scary, I use a stair cane now that rest on two steps at a time. Still need help. Dread going up. This Tuesday, I am getting my stairs measured for a chair lift. They are not as expensive as I thought. Cheaper than attempting a shower in our small powder room. Use a shower chair that I can sit on and lift my legs and slide over under the showerhead. My feet are too heavy to lift.
Stay in here and read. This is the best place for the best information and advice. Good luck. 🍀
I go from feeling hopeful, to angry, to sadness. It is an emotional roller coaster.
The advertisements? The very minute you use your search engine and type in neuropathy, 💥 you will see so many ads or testimonials for what ‘really works’. NOTHING that these snake oil people are pushing works. I actually call them that and shame them for taking money from desperate people. Mostly I just hit the delete button.
Only thing keeping me going, other than my husband a a few close friends that call often, is my recumbent bike, my foot massager and my portable elliptical. Massage the feet and ankles nightly. I use any lotion with mint in it, Bengay or Vicks vaporub. I watched videos and try to
do a vigorous massage.
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Like -
Helpful -
Hug
1 ReactionCheck out my link here
https://connect.mayoclinic.org/comment/645606/
I have ideopathic neuropathy. First diagnosed in 1999. My main issue is balance and restless legs at night. Also some venous insufficiency recently. I am 85. I wear support hose in the day. I find rubbing my legs with frankincense and myrrh in an olive oil rub sooths my legs enough that I can sleep. I was on gabapentin, lyrica, etc but that only made my balance worse. I am now wearing ( one week) the HIKE "earth shoes" hoping for some relief. Too soon to tell.
-
Like -
Helpful -
Hug
3 ReactionsALA has helped reduce the numbness for me, an 85-year-old man, 10 years into being diagnosed with peripheral neuropathy. A dosage of 300 mg per day is considered light, and I will soon increase it if heavy numbness progresses beyond the bottom of my feet (mild numbness felt to lower calf area).
-
Like -
Helpful -
Hug
1 Reaction