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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 hours ago | Replies (6267)

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@cmtperson

I am 68 female, with a hereditary peripheral neuropathy (CMT) which was diagnosed at around 50 years of age. My father has it, and is still alive at 93, but has very poor balance and can barely walk with a walker and ankle braces. He was in a wheelchair because his legs became too weak to walk, but PT helped him recover. My brother is 2 years older than me and has worse symptoms than me, needs ankle braces and a cane. My brother and I were avid alpine skiers and athletes, but that type of athleticism is gone because of leg weakness and loss of proprioception. I am doing what I can to keep what muscle strength I have. I saw something about LLLT and thought I would ask.

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Replies to "I am 68 female, with a hereditary peripheral neuropathy (CMT) which was diagnosed at around 50..."

Welcome @cmtperson, It's good to hear that you are doing what you can to keep your muscle strength. It definitely helps. There are quite a few discussions on CMT that you might find helpful. Here is a list - https://connect.mayoclinic.org/search/discussions/?search=CMT. Also, there is a discussion on Low Level Laser Therapy (LLLT) that you might find helpful:
-- Anyone try LLLT red light therapy for helping with PN?
https://connect.mayoclinic.org/discussion/anyone-try-lllt-red-light-therapy-for-helping-with-pn/
Have you seen the Foundation for Peripheral Neuropathy website? - https://www.foundationforpn.org/living-well/