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52 years old BRCA 2 positive with a gleason 6 score
Prostate Cancer | Last Active: 4 hours ago | Replies (18)Comment receiving replies
No, they did not estimate how long I have had it. I’ve actually never heard of anybody getting that information…. But….. I had a biopsy about a year before the one that came up with Gleason 3+4, and there was nothing found. When they examined my prostate after surgery, it was 4+3, Something the biopsy never located. It could’ve been a year before If they had hit the right spots, it would’ve found something.
A few months ago, I saw a webinar where they really got into the reasons for not doing anything with someone who has a Gleason six. Unfortunately, it was never made available to view again. It was done through the Mayo Clinic on Dec 12,2024. I did Capture a number of screenshots during the webinar. I’ll look through them and maybe post Some of them in a future message.
Your PSA is very low and you have nothing showing in the MRI, Why did they do a biopsy? What made them suspicious that something was wrong besides the fact that you have BRCA2.
It is true that about 10% of prostate cancer patients do not produce PSA, So it stays low, even though the cancer is getting worse.
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I was given an MRI and biopsy as I opted to be part of this BRCA clinical study at Sunnybrook in Toronto after I tested positive for the gene. The head oncologist of this study said this is the truest way to check and monitor due to the mutation. I was immediately floored when the result came back what it did. I'm still dealing with the shock and anxiety. Now I'm trying to get as much info as possible as I was not prepared for this result as it caught me off guard. I'm still freshly coming off watching my parents pass one after each other. My mom passed of breast cancer at 66 in 2020 and my dad at 75 in 2022 of prostate cancer. Both were discovered at the end when it was to late. My dad was involved in a trial at Sunnybrook as his options were limited to him not responding to treatment. In the trial they discover he had BRCA 2 and I was informed of this last Oct 2 years after his passing when the trial was concluded. This led to my BRCA test which was unfortunately positive for the mutation. I was referral to this oncologist at Sunnybrook the same hospital and here we are its all happening so fast. I feel fine in general and been checking my prostate for a few years now annually and the physical exams and PSA tests were always normal. I asked that specific question of how long I could have been harboring this and how many samples they found to contain the disease and was told in 2 of the 16 both on the same side. I was told it's possible I have been living with this for years already. the thought of this in my body right now is very scary and due to everything I read about BRCA and the horror stories I debate whether active surveillance is for me. After reading further on the treatments nothing seems like great options so I'm doing the most I can at the moment with info gathering. Sorry for the longer explanation but I hope I explained this more clearly.