← Return to Has anyone had a rems bone scan or tbs bone scan?

Discussion
Comment receiving replies
@lhankins

@drsuefowler
The original endocrinologist stated I was borderline but prescribed a medication called Thyrolar 3 (I believe, this was more than forty years ago). I was in college at the time. It had significant side effects a few hours after taking it. Never really tolerated it. Graduated from college, moved to a new area and the new endocrinologist put me on Synthroid which I tolerated better. Years later after my first child was born, the endocrinologist suggested I start to wean off, but take my time. His theory being that originally I may have had some type of infection instead. Since the original test showed borderline, he thought that I may have a ‘working’ thyroid gland after all. I did it very slowly over the course of a year subsequently moving to another area. New doc tested my thyroid off the meds and yes, I was on the lower end but not what he deemed enough to treat. I have had no problems since. My mother was also border line but her doctor never treated her for it. She lived a normal life all the way to 96 years old.

I believe I got lucky with that endocrinologist who took the time to see if I really needed the meds or not. I also believe that was back when doctors took more time with their patients and it wasn’t such a drug driven era. This is pre HMO’s and small private practices were common; not these huge medical groups with drug reps dropping by constantly with designer drugs and perks for the docs.

Prolia is the big push right now. Undoubtedly effective for people already fracturing. My rheumatologist says it is safe for life and that is what he wants for me. My primary care PA stated “I don’t know why all of you seem so scared to take Prolia, it has a fantastic record”. Apparently she has other squeamish patients. No mention of potential side effects, like it’s a multi vitamin.

When I have stated my hesitation about the side effects it’s always a come back of “It impacts a very small percentage of people”. Welp…someone always occupies that percentage. My rheumatologist stated he never had anyone suffering from hypercalcemia due to Tymlos. Well, I developed it, so I occupy that small percentage.

Bottom line; we all have to come to our own peace with the treatment plan we follow. God help us all.

Jump to this post


Replies to "@drsuefowler The original endocrinologist stated I was borderline but prescribed a medication called Thyrolar 3 (I..."

@lhankins,
Yes, many of us are in that percentage where we do get side effects. I have
hypercalciuria from Tymlos and Forteo, but my endocrinologists don't care.
My PA told me that she isn't aware of many problems with Prolia. She then
said that since it is administered once every 6 months, her patients don't
connect problems they are having with Prolia. I amput. very afraid to take
any medication that stays in the body for a long time. I am so sensitive to
so many medications. I only agreed to take Tymlos, because I was desperate
to build bone after so many fractures. I could only tolerate a half dose.
Thanks so much for your posting.