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@dbmenger

Am I the only one that Lanreotide makes feel horrid? I’m nauseated and constipated with a cramp in my right side that encourages my IBS to act up.
My GERD has gone berserk and scoffs at both famotidine 40 mg and Nexium.
Then there are the migraines - even Ubrelvy can’t conquer them as one headache ends and another begins within minutes. I have insomnia and am sluggish and achy all day.
I also am mightily depressed because I have an active life that I’m viewing from the sidelines.
My oncologist says I can stop these shots after this, my second one, but I need to know how long or if I will feel this way forever. I got the shots in the first place because of the severe flushing, even though no tumors appeared on the scans and my Chromogranin A level was 607. After the first shot my level was 326. My oncologist is “aware” of my situation, according to her nurse but she gave no suggestions to alleviate these reactions so I thought I’d ask y’all for assistance and information.
Blessings!

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Replies to "Am I the only one that Lanreotide makes feel horrid? I’m nauseated and constipated with a..."

Hello @dbmenger,
Has your doctor offered you an alternative treatment if you discontinue the Lanreotide? If not, please inquire about an alternative. I look forward to hearing what others have used when Lanreotide has caused side effects.

I have been on Lanreotide for a year and a half and at the beginning many symptoms slowly disappeared when my body adapted to it. I am doing much better, but have also added on Lenvatanib (Lenvima) which is a targeted chemo in tiny little daily pill form. So far, both are stabilizing the tumors and with a little shrinkage as well. We all have our own experiences. Test subjects until we overcome!
If you don't have trust in your current doctors, seek other opinions. Best of luck!