← Return to Craniotomy is 2/21/2025. Could use some encouraging words.

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@mkoch

M.D. Anderson clinic in Texas is renowned as one of the best cancer clinics in the U.S. Given that, it would seem they have excellent neurosurgeons who operate on both cancerous tumors, and meningiomas, which are benign tumors.( 97% of the time) I had a meningioma in the sphenoid wing of my brain and 2 doctors said that nobody would ever operate in that area of the brain as it was too dangerous. Then I saw a neurosurgeon at UCSF who said, "No problem, I do one or two a week in that location." I had the surgery a little over a year ago. I feel fine. The hysterectomy I had over 20 years ago was far worse than the craniotomy. Unfortunately, bigger doesn't necessarily mean better. Sometimes as the meningioma grows bigger it will wrap around arteries and/or other structures which makes its removal more difficult. Were you having symptoms 5 years ago? If you were, it seems radiation would have been offered to stop the growth. Perhaps you have been on the watch-and-wait protocol, leaving things alone and waiting to see if will grow. But now that you know it is growing you need to get a referral to meet with a neurosurgeon.

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I had stereotactic radiation which was supposed to zap the tumor preventing growth however here we are 5 years later and it has grown bigger. I have had severe dizziness and headaches that doctors continue to claim are not related. I never had these symptoms previously.