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PSA Nadir is main deciding factor when one can start on Intermittent H
Prostate Cancer | Last Active: 1 hour ago | Replies (8)Comment receiving replies
Dr. Scholz has told many people that have come to him and then reported in meetings to Stop ADT. He is pretty aggressive. NCCN guidelines say you should be on it for 24 months so even 18 is fewer than the guidelines suggest. With your high decipher Score and a Gleason nine you’ve gotta be careful. If you do stop ADT, make sure to get PSA tested at least every three months.
In some cases, with the Gleeson nine, the cancer can spread a lot if you stop the treatments. With other people, it ends up being very slow growing or doesn’t come back for a long time. Of course they don’t differentiate decipher scores when I hear about this. Some of the long timers weren’t tested because decipher was not available.
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Thank you, Jeff. It looks like Dr Scholz follows latest trials more closely. A friend of mine who is a radiation oncologist that treats Breast cancer, told me but not prostate cancer told me when I ran into her at a party told me when I asked her about NCCN guidelines in light of Dr. Scholz's recommendation that it takes time for the guidelines to change as it requires agreement of all the participating institutions.
Yes, Dr Scholz told me about regular PSA check and if it reaches certain threshold, I need to get a pet scan also.
My oncologist at UCI told me that UCI is running a trial being on ADT for 12 months vs 18 months.
For all of us there is no one perfect pathway going forward! It looks like we have to take our chances ultimately and hope for the best!