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Bone density drugs

Bones, Joints & Muscles | Last Active: 5 days ago | Replies (115)

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@rashida

@babby yes, as far as I know you do have to go on a relay drug when coming off Prolia, especially after several doses.

I found out about the side effects of Prolia just after my first dose, and refused the second one six months later, and any subsequent doses of course. I took nothing else for about five years, until my current doctor decided to put me back on Actonel which I had been taking before Prolia. A recent bone density test ordered by her showed no fractures, and only degeneration of my cervical discs which Inhave had for some years now. She said I may have to consider Prolia if Actonel does not show prevention of any bone loss at my next bone scan. I have no intention of taking it, no matter what the scan shows. I have just been very careful about falls since I took that first (and thankfully last) dose of Prolia.

In your case the Reclast may be necessary to prevent the spontaneous fractures which could result from Prolia since you were in it for that many doses.

There is a Facebook page on Prolia and its side effects. I went into it briefly but found there was too much reading on it so I stopped following it. I got off Prolia early enough and so far … no fractures or broken bones! 🤞🏼

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Replies to "@babby yes, as far as I know you do have to go on a relay drug..."

@rashida
Have you considered an anabolic like Tymlos or Forteo instead of Prolia, if the Actonel doesn’t work?
I was on Forteo after my fractures, unfortunately after 4 months my calcium level went dangerously high, and I had to come off. Tried Actonel after that and then finally Evista. Had to stop these was well due to reactions.
For whatever reason I have reactions to all osteoporosis drugs, I’ve talked to my endocrinologist about this and she has no explanation as to why.
Personally I think it’s because I have autoimmune issues. Since all osteoporosis drugs impact immune cells, I think this is the reason I’m so sensitive.
I just started hormone replacement therapy and am hopeful this will at least keep my bone loss at a minimum.

I was only on it for 6 months as well-terrible side effects - now on actonel once a week 35 mg. however I have some GERD issues and swallowing issue from actonel- going for a barium swallowing scan. I would like to take nothing- I have disc issues in my back and getting prolozone shots which work very well. Having new bone density scan done this week.