← Return to Starting Peritoneal Dialysis: What do I need to know?

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@gingerw

@trishak Welcome to Mayo Clinic Connect! I am truly sorry to hear that your husband's transplanted kidney has failed on him. Has he been able to reestablish himself on the transplant list?

When you go to your dialysis center, ask them about resources of information about in-home dialysis. There is both peritoneal and home hemodialysis. A vascular surgeon could determine if your husband is a good candidate for peritoneal dialysis; factors that might preclude that form include excessive scarring in the abdominal area.

I know @rickkaplowitz does hemodialysis in center and has done a lot of traveling, even international! He maintains his independence and cheerful attitude.

For me, I am on peritoneal dialysis since Sept 2022, and now have a schedule to do an overnight dwell of fluids, draining each morning. This frees up my day, thankfully. I have a portable bag heater purchased from Stickman Dialysis Supplies https://kidneystuff.com/products/daytripper?pr_prod_strat=jac&pr_rec_id=915848acf&pr_rec_pid=200689057819&pr_ref_pid=201058779163&pr_seq=uniform&_gl=1*c2cixg*_up*MQ..*_ga*MjQ3Mjc1MTk0LjE3NDA5Mzg4Njc.*_ga_9GM5WY6SQ7*MTc0MDkzODg2Ni4xLjEuMTc0MDkzODkwOS4wLjAuMA..
This allows me to take off on trips, and I can use my power port in the car to warm up my bags.

You're right, this is a new normal for you, and you've come to the right place for experiences!
Ginger

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Replies to "@trishak Welcome to Mayo Clinic Connect! I am truly sorry to hear that your husband's transplanted..."

We have discussed the possibility of retransplant with our kidney transplant team in Washington. However, it might be several months from now before that could happen and my husband would have to qualify all over again as a suitable candidate. It's my understanding he would not have to start over on the waitlist. We've considered listing with Mayo clinic, but don't know what's involved or what that would mean for waitlist status.
In a perfect world, we could go straight to retransplant and pass on the peritoneal and home homodialysis.
I appreciate the feedback and the links.