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@janedoe130

Oh @lowrymal50 I am so sorry! Is your neurologist with Mayo Clinic? Mine is in Raleigh, NC.
She just prescribed 10mg 48count 10 day prednisone. I do hope my vision/blurriness calms down!!!!! The rash is gone, as is that strange pain in my shoulder. I think it's headed in the right direction. I am extremely grateful that my symptoms do NOT include body aches.
When I start feeling anxious, I really try hard to identify it as such, and not just another symptom, but I think I gained 3 lbs this past week while sick, because I'm anxious eating. I know that's so not good for me.
My sister in law is experiencing the same. I'm in Raleigh, she's in Kansas, and her Neurologist is telling her the lesions are scar tissue and will not go away and that she will need to do things to create new neuropathways to help with her symptoms. That gave me some peace, but now I'm trying to figure out ways to improve my eye vision using these exercises. I think that focusing on something that will help me is occupying my brain and helping me chill, too.
Sending a hug.

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Replies to "Oh @lowrymal50 I am so sorry! Is your neurologist with Mayo Clinic? Mine is in Raleigh,..."

I will say that prednisone does help but it will make me eat and gain weight. They didn't want me on it for a long term due to the side effects. If it is working at least that tells me that it's inflammation. I live in SC. I was referred to the Mayo clinic but they didn't take my Medicare Advantage so they wouldn't see me. 🙁
I see a rheumatologist in 3 weeks so fingers crossed. Maybe some answers soon. I hope u start to feel better

Hello, please look into Lions Mane Mushroom. It can help neuro protect and help heal nerves and I think make nee connections. there’s also research on nicotine and how it can help heal. MS and Parkinson’s was mentioned when I saw the video. people wear low nicotine patches from what I’ve read.