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MAC with Interstitial Lung Disease

MAC & Bronchiectasis | Last Active: 1 hour ago | Replies (10)

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@ginnysc

Is the ILD being treated? Or just the MAC? My rheumatologist said that he plans to treat it with an immunosuppressive drug, but maybe that's due to the sclerosis. I have an appointment with the pulmonologist in April and hope to get more information then Thanks!

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Replies to "Is the ILD being treated? Or just the MAC? My rheumatologist said that he plans to..."

@ginnysc my MAC is no longer being treated as it is gone. I’m guessing when you said “it” you meant the ILD?? I was never treated for the ILD. The MAC treatment was enough for me to deal with as it was long and grueling. Until I absolutely positively have to be treated with immunosuppressants or anti fibrotic medication Ginny I choose not to. But that is me. Sometimes we don’t have a choice. That was me and MAC - I had no choice but to do the medications. Your doctors should help you make the best choice for your particular circumstance. Praying for a good outcome for you at your appointment. Irene5