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Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: 1 day ago | Replies (237)

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@ssalava

In the early days of the pandemic lockdown, I had an MRI for my pituitary gland requested by my PCP and while not in the target zone, a 'mass' could be seen in my upper right sinus cavity. So I was referred to an ENT but it took weeks to get into to see him because COVID-19 protocols were fluid. After several weeks, my ENT performed a 360 CT scan confirming the tumor's location and size. It was removed through my nose via day surgery a few weeks later and the pathology confirmed the removed tissue was an Ameloblastoma tumor.

With follow-ups exams (via video camera up my nose) with my ENT, and while unspoken, I could see the concern in his body language and facial expressions. The tumor was re-growing. An MRI six months after removal confirmed such and I was referred to a local maxillary surgeon and dental specialist (prosthodontist).

But I ended up choosing the Mayo Clinic with Dr. Arce and his partner (name escapes me). After a six hour maxillary re-section surgery with an FFF, the tumor was removed for the 2nd time 13 months after the ENT's surgery.

I visit Rochester once a year (during the summer, never again in the winter, I'm from Texas) to see Dr. Arce and Dr. Mueller. My local ENT performs a nose video exam and orders an MRI once a year to confirm no re-growth.

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Replies to "In the early days of the pandemic lockdown, I had an MRI for my pituitary gland..."

Likely Dr. Ettinger? Along with Arce and Mueller they are my team as well for a mandible reconstruction however not for Ameloblastoma but for Osteoradionecrosis. Amazing stuff they do. If it wasn’t for HIPA, we could all get together (at Rochester in the Summer) and celebrate this wonderful team.