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Inhaled Amikacin and Clofazimine

MAC & Bronchiectasis | Last Active: 19 hours ago | Replies (9)
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@thorne

I did the first three and felt the best I have felt since my diagnosis and I have heard clofazamine is easy to tolerate (with skin darkening/tanning) as the only noticeable side effect. I would give the regimen a try - you can always adjust the meds if needed.

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jerseygirl2 | @jerseygirl2 | 1 day ago

Thank you so much for responding. I immediately felt a sigh of relief just to know someone did some of my proposed regimen. Ques - did you take the meds every day and for how long?

I wondered if you were not worried about the studies that list irreversible hearing loss and tinnitus that often comes with the amikacin, along with hemoptysis and dysphonia? My voice is my livelihood (work with youth and teens, lots of counseling, lots of workshops, etc)

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