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Share your test results (if you'd like)
I thought it might be helpful to have a thread dedicated to sharing routine test results, good or not-so-good. My intention is just to provide a place for sharing, support, and encouragement, not for debating tests and treatments
I'll start. I've been at stage 4b oligometastatic for over 2½ years, and last Friday I did my routine 12-week bloodwork. My PSA remains below 0.01 (undetectable), Orgovyx and Erleada are holding my testosterone at 0.2, and the other tests are in normal ranges, except for those related to iron, which are slightly low.
Overall, it was a banner day! 🎊 I always treat myself to a masala chai at the little Indian café across the street while I'm waiting for my results to pop.
Do you have any recent test results you'd like to share?
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Oops, misread (too many test results coming in at once). Testosterone is actually back down again, so all is well on Orgovyx.
My LDH is still a bit elevated, but it's a non-specific indicator that just points to *some* kind of bone stress (not necessarily cancer), and my oncologist agrees that it's likely nothing more than irritation from the metal rods and cement in my middle spine as I continue to increase my activity, including weight lifting. ALP is well down in the normal range, and that, combined with the fact that PSA is undetectable, makes it unlikely that the LDH by itself is a cancer signal (but of course, I'll raise it again with my RO, as I do every 3 months; I'm not afraid of eye-rolls).
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2 ReactionsHad 28 sessions of proton radiation during April-May 2021 (+ SpaceOAR Vue injection + 6 months of Eligard). PSA result yesterday was 0.478 ng/mL. Still good…….
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2 ReactionsThree months post treatment (radiation ended in June, ADT ended October 31). Radiation was primary treatment--didn't have surgery. PSA 0.1, testosterone 260. Pre-treatment PSA was ~7, testosterone was 620.
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2 ReactionsAfter 11 months on Orgovyx, my psa is 0.03
I am thinking of discontinuing Orgovyx after one more month and go on Intermittent Hormone therapy after consultation with my team.
ava11: Have you or your doctor thought of halving your dose or alternating days on Orgovyx? Are you stopping because of side-effects (hot flashes for instance)?
How has your testosterone level responded to the ADT? (Sorry for all questions.)
I had my monthly visit last week,, got my Firmagon shot (OH JOY) . Actually only a couple days of discomfort most times. Testosterone staying < 3. Psa is at .09. Been ticking up since last June when it was staying at < .02. I have put on 8lbs since retiring first of the year. I'm excited about starting new med next month. Leuprolide Acetate, not sure which brand that is, hopefully someone knows or I can ask next visit. Just want to know when reading posts on it. With the new treatment I only have to go quarterly visits, I will get the Leuprolide shot and my quarterly shot of Xgeva. Doc asked if I wanted to go to a 90 treatment, I said okay, guess they don't have 90 day Firmagon treatment. Side effects seem the same so I'll see how it goes. All and all, I'm much better than I was two years ago. Best to all.
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2 ReactionsGood luck with the new treatment!
Leuprolide goes by the brand name "Lupron". It's an older (1990s) ARSI that's still often used instead of the 2nd-gen "-lutamides" for various reasons, including — but by no means limited to — price.
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3 ReactionsMy last result was .13. I get tested every four months. So far, I’ve avoided radiation and hormone therapy.
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