Thank you.
(Sorry for the length.)

I wish I knew exactly what caused my symptoms, but I doubt I ever will. I had paresthesia in my feet and nighttime awakening with hands numb most nights. Then intermittent burning skin on my arms and feet. Before that I had body wide fasciculations. An EMG showed no neuropathy, but I’ve read that test doesn’t show PN.

There were several theories of causation….including Vitamin B12 deficiency. My neurologist thought it was the most likely. I began large sublingual doses. It’s important to get labs on it before you take any to get a true value. Too much B6 can also cause symptoms.

Other potential theories were post covid syndrome, of which I was also diagnosed about the same time. I also had smell/taste disorder which all occurred around the same time right after covid. ENT seems to believe time can allow the healing. Part of the smell/taste disorder resolved! I did do scent training that might have helped. I actually took smell taste tests that documents the progress. Some of the taste issue has not resolved. I still have a constant metallic/bitter taste. It’s very distressing. I try to keep hope it will resolve one day.

I also have type 1 diabetes (many years, but mainly well managed) and many with that condition get neuropathy. I worked hard to get my blood sugar much lower after I got those neuropathy symptoms. My last a1c was excellent.

I am post menopausal and don’t think that was a factor. No doctor mentioned it. I also consulted with a rheumatologist and my endocrinologist about it to rule out autoimmune and endocrine disorders. So, not hormonal.

I also had just began fitness journey and lost weight, ate right and engaged in daily exercise.

So….I’m not sure what caused those symptoms or caused the improvement. I hope it continues to improve. I still get intermittent nighttime awakening with numbness in hands, but not often. One or the other. Never both at once. This causes me to suspect a spine issue. But, IDK.

I still have slight foot paresthesia, but it’s so much better. I have full sensation. I hardly think about it now. I still have slight imbalance that I’m working on. I intend to ask my neurologist about spine issue and next steps at my next visit.

I never did have any pain. I hope you can figure out something that helps. I was very scared when mine was so pronounced. I feared it would progress through out my body. I don’t know my future, but for now I’m much better and am encouraged. Best wishes for your recovery.