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@parpro

I thought i posted this the other day but I don’t see it so I’ll post again. I’m wondering if anyone has seen their sob worsened with Ohtuvayre? I’ve been on it for about 6 weeks now. Definitely no improvement. I had planned to give it 3 months. but lately have really been practically gasping for air most all day-not at rest. I’m on oxygen 24/7. And now a round of prednisone which doesn’t seem to be helping. Just thought that perhaps I’m having a reaction to the Ohtuvayre. Will check with dr on Monday but thought I’d ask here.
I’m hoping this is not the normal progression of the emphysema. 🙏🙏

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Replies to "I thought i posted this the other day but I don’t see it so I’ll post..."

I was on t for four weeks with no change. Doc says keep on. Two weeks later I crashed and spent three days in hospital. Don't know how this docs other patients are doing. She put off my next appointment until May. Another from same practice had seen me in the hospital. Nothing was changed in my meds, this was added on.