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Working out with PMR

Polymyalgia Rheumatica (PMR) | Last Active: 16 hours ago | Replies (43)

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@johnbishop

Hi @phogan0609, Welcome to Connect. Sorry to hear Mr. Ugly (PMR) has invaded your personal space. I've had 2 occurrences of PMR and was started at 20 mg prednisone for both. Took 3 and half years to taper off of prednisone the first time and 1 and half years the second time. I think being a competitive athlete is a plus for you because I'm guessing you already eat healthy and it's important to stay active as much as you can without overdoing the exercise.

I'm not sure if you are on a tapering schedule provided by your doctor/rheumatologist but you might find it helpful to read through the references in the following discussion:
-- How to Slowly and Safely Taper Off Prednisone but ... no set rules.
https://connect.mayoclinic.org/discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules/
If you want to know a little more about PMR, the following discussion has an informative video - Comprehensive Overview Of PMR: https://connect.mayoclinic.org/discussion/comprehensive-overview-of-pmr/

What really helped me manage my symptoms was keeping a daily log of my level of pain (0 to 10) and my dose of prednisone for that day when I got up in the morning. Do you keep a log of your pain/symptoms and doses daily?

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Replies to "Hi @phogan0609, Welcome to Connect. Sorry to hear Mr. Ugly (PMR) has invaded your personal space...."

I just started last week. I don’t think I’m even on an appropriate dose yet because I’m suffering tremendously. So no talk yet of tapering.