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Anyone had ONJ while on a bisphosphonate?

Osteoporosis & Bone Health | Last Active: Mar 5 12:49pm | Replies (17)

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@shelmadine

Yes, I was taking Fosomax, then Actonal for 2 years for osteoporosis. Thanks for reaching out. We just really need to inform each other with our experiences. This is a good site for that. Take care.

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Replies to "Yes, I was taking Fosomax, then Actonal for 2 years for osteoporosis. Thanks for reaching out...."

I too since 2005 years been on Fosamax and Actonel as follows with a 7 year breaks in between :
Fosamax (alendronate sodium 70mg-bisphosphonates )
1-Nov-05 1-Jul-10 1 every 2 weeks ( standard is 1 per week) then 2.5 year break
1-Jan-13 1-May-14 1 every 2 weeks ( standard is 1 per week) ceased due to dental work needed and dentist wanted me off drugs for at least 12 months
Then 7 year break
Actonel ( risedronate sodium 35mg-bisphosphonates)
21-Oct-21 31-Jan-22 1 per week (standard is 1 per week)
31-Jan-22 25-Nov-22 following blood results dose reduced to 1 per fortnight
25-Nov-22 12-Nov-24 following blood results dose reduced to 1 every 3 weeks
ceased in Nov2024 as had been on it for 3 years - albeit at reduced dose
I am now 70 years old and have been put on half dose Evista since Jan 1 2025 .
Will be reviewed in June 2025 with endo
My DExa in Dec 2024
Spine -2.3
Left femur neck -2.2
Right femur neck -3.0
TBS 1.37
I am on Onero program and have my own physiologist for weight training as well as walking up and down hills every day & running on a treadmill 3 days per week. Also have private pilates with physio each week to make sure I work all internal core muscles to help with Stabilising spine and hips etc
I am not expecting Evista will do much - so interested in Evenity experience.
I also have osteoarthritis in spine hands ankle and knees so have to keep moving

How many years were you on Fosamax before you took Actonal? I a so sorry for your pain and suffering. Thanks.